This is the main basis of the #redinstead hashtag. People always applaud Autism Speaks for its advocacy. Change ), You are commenting using your Twitter account. Ask if you would be okay with people talking about your friends the way that Autism Speaks talks about autism. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. I decided to take a chance to educate people on why they should not support Autism Speaks, why you shouldn't light it up blue and why … Her contact info is: (215) 898-1935. The majority of their funding goes towards autism “research”. We have a voice. Find the date of your local event by searching below! Change ), You are commenting using your Google account. #4 The Autism Speaks blog and their Facebook page. Philadelphia’s ATN led us to our sons’ developmental pediatrician, Dr. Amanda Bennett, who I am quite certain has saved our sanity on several occasions with her expertise and compassion. Want to help support the cause? View the original article here. Read Tom A. To my delight, some had decided to do some research. We speak the only language that matters: love for our children. Change ), You are commenting using your Facebook account. Since I wrote that piece, I’ve had many conversations with friends about the spectrum. Autism Speaks Canada Need Personalized Support? It’s obvious that Autism Speaks is an organization that is always working towards meaningful change in the autism community. Autism Speaks tells the world that autistic people are ultimately the reason that many parents divorce each other, and that autistic people are incapable of living full lives. When we found out that A-Man is autistic, I went into research mode, like I do with everything. A cornerstone piece of the residential experience is having staff who, by virtue of the fact that they are with the students and residents all day every day, learn the … That they are suffering from some terrible disease like cancer that needs to be cured immediately. We all need support – not just the child on the spectrum. This is a post by Kimberlee Rutan McCafferty, mother to two sons on the autism spectrum and an Autism Family Partner at the Children’s Hospital of Philadelphia (CHOP). The decision however was made easier for us many years ago, not long after Justin’s diagnosis, as my husband and I searched frantically for services and information for our eldest son with severe autism. There are many other autism groups, like ASAN, the Autism … For those that aren't aware, Autism Speaks's mission is to "promote solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. #1 Our favorite reason- the services and supports provided to us by the Autism Speaks’ supported Autism Treatment Network. Autism Speaks has the ultimate goal of ending autism, by any means necessary. On certain days, only chocolate helps. Why do so many Autistic people protest against Autism Speaks? “People with autism don’t support Autism Speaks.” This is far from the truth. Kim wrote this blog in support of #GivingTuesday! We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism… From my … You think because some of our children cannot speak, we cannot hear them? With two kids on the spectrum, there isn’t a ton of discretionary income rolling around in our household, but my husband Jeff and I give what we can. Here's an over view of why many people with autism don't support Autism Speaks, and their controversies over the years. It also supports the Toddler Treatment Network, which develops … Autism Speaks still has a base of support among families of young children, but it has very little support from parents of older kids, or autistic adults. We are dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. ( Log Out / Frankly it could have been overwhelming deciding which autism organization to donate to, as there are so many worthy ones out there. Through … Oct 16, 2016. These donations are rare and are a vital component of research into the causes of autism. Autism Speaks is enhancing lives today and accelerating a spectrum of solutions for tomorrow. #3 The Autism Speaks Tool Kits! Autism Speaks is one of the largest and most influential autism awareness organizations in the world. I can’t tell you how many times I’ve learned something new from these pages, or realized I needed to make changes in our lives from something I’ve read. But before that happened… The number to reach them is: (888) – 8AUTISM. Change ), You are commenting using your Facebook account. Finding Autism Speaks was a godsend for us then, and the organization helped us a second time when our second son was diagnosed with autism as well. Our capacity to love is greater than your capacity to overwhelm. Autism Speaks funds the Autism Tissue Program, a network of researchers that manages and distributes brain tissues donated for autism research. 153 Autistic Axolotl A few weeks ago I wrote an article about how amazing my brother with aspergers is. Read letters of people who have worked with Autism Speaks, and learn why they quit. And as we compare, 22% of their … "We are looking at adding individuals with autism to various advisory committees," he said. “Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism.” It’s also right there in Part II of their Form 990 (U.S. tax … Autism Speaks is Searching to “End Autism”. Kim is also the author of a blog about her two children with autism at autismmommytherapist.wordpress.com. The following joint letter explains why Autism Speaks is not an organization that ethical businesses should sponsor, fundraise for, or otherwise offer support. ... Read the "I Am Autism" transcript, or watch the video. But what people don't know is that Autism Speaks is actually a terrible organization, denounced by autistic people themselves. One of the biggest discoveries made was that people on the autism spectrum typically need a highly structured, customized atmosphere to make real progress, which is why residential settings become a must for children like Jonathan. Autism Speaks is one of the largest autism organization, yet they are not focusing on autism affected people and their families. December 3, 2014 alishoaib464 Leave a comment. My social media: https://www.facebook.com/JustJessyca https://www.facebook.com/ThatModernMombie https://plus.google.com/+ThatModernMombie81 … Autism Speaks supports every horrible stereotype about autistic people. Change ), You are commenting using your Google account. Less support for Autism Speaks, though for now, we can only guess its impact. ( Log Out / #5 The people who work for Autism Speaks. Further additions are appreciated. 's Story Erin C. | 31 years old From eating issues to sleeping disorders, behavioral challenges and the 100 Day Kit for Newly Diagnosed Families (the latter of which I wish I’d had nine years ago), these informational gems have helped us at times when even the professionals in our lives were stumped. What's wrong with Autism Speaks? Change ), Looking To Nudge Senator Elizabeth Warren Into 2016 Presidential Race – NYTimes.com, Malicious Prosecution Claim Against Hollywood Sex Abuse Accuser Can Proceed, Says Judge, Massive Car Bomb Explodes Near Home Of Iranian Ambassador In Sanaa, Yemen, Protests Erupt After Decision In Eric Garner’s Chokehold Death. I can’t recommend the ATNs highly enough. The group is also initiating a better outreach to adults with autism. I am not saying helping families with autistic children is not necessary and important, but if Autism Speaks only focuses on programming for parents, it abandons the children who are certainly in equal if not in more need of Autism Speaks’ help. Share this: Twitter; Facebook; Like this: Like Loading... Related. Autism Reasons Speaks Support Post navigation. Change ), You are commenting using your Twitter account. Consider boycotting and writing to companies that support Autism Speaks. ( Log Out / Any way that works for you is the right way to participate — whether that's on wheels, on foot or online! #1 Our favorite reason- the services and supports provided to us by the Autism Speaks’ supported Autism Treatment Network. Autism Speaks supports the Clinical Trials Network, which focuses on new pharmacological treatments. Autism Speaks Walk events will be tailored to fit local needs in each community, but our goal remains the same: to come together to raise funds for people with autism and their families. Only 4-5% of their funds actually helps people with autism. I was scared and knew nothing about Autism, nothing positive; anyway, of the little I did know.I was given… Autism Speaks is one of the most well known autism organizations, but has been under fire for their hurtful advertisement, the lack of inclusion of autistic voices, the support of Judge Rotenberg Center, and more. It has been associated with "Light it up Blue" day (on April 2nd) and basically anything that has to do with autism awareness. The ATN is comprised of a network of hospitals, physicians, researchers and families at 14 sites across the US and Canada. In the small DC office that I worked at this summer, several employees had autism and we have weekly volunteers with ASD come in. In the video, the narrator, identified as “autism,” goes about spouting hate and … Autism Speaks remains successful, despite the lack of support from people with autism because it caters to parents of children with autism. ( Log Out / Autism Speaks is also responsible for the atrocity known as “I Am Autism.” It was a video that was released as part of an awareness campaign. This is a collection of links discussing various controversies involving Autism Speaks. Why I Can't Support Autism Speaks From the eyes of someone they claim to speak for. I had the pleasure of meeting a number of employees when I spoke at the kick-off for the Philadelphia walk. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. #2 Dr. Margaret Souders, a registered nurse who is spearheading a revolutionary sleep program through the ATN, who literally made house calls and enabled us to break a four month cycle of insomnia with our youngest son. Alex Bingham. Western Illinois University. Perhaps I should say this one is my favorite. Yes, it’s that time of year again where we’re all pulled in a million different directions. One of those things for my family is the decision to donate to Autism Speaks. In their videos, autism is spoken of as a monstrous disease that rips apart families. They’re the most popular autism organization, but they’re so harmful.) But sometimes when I slow down a bit, my choices are simplified, maybe even actually easy when I take the time to breathe. 5 Reasons Why I Support Autism Speaks. Autism Speaks has been hailed as one of the greatest "advocates" for autistic people. Eventually, that research lead me to realize I’m autistic myself. Previous Post Dreamers Divided: Obama’s Executive Actions Leave Some Young Immigrants Out Next Post From the Philippines to Autism Speaks, with … Today, Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We are a community of warriors. Find out some reasons for Why is Autism Speaks badly? Have I mentioned that they’re free? While most of them are not WP:RS in themselves, they may be useful to identify topics to discuss, and/or point to RS's that can be included in the article. Autism Speaks puts great focus on “curing” autism, which reinforces another stereotype: that autistic people are unhappy. That is autism’s weakness. Bell admitted that Autism Speaks does not have any individuals with autism currently serving on its board. Reasons for “Why is Autism Speaks badly?” Because it doesn’t help autistic children and adults as they promised. (Inside: 4 reasons to not support autism speaks are a must read for all autism mamas! ( Log Out / Here are the top five reasons why we support them and are so grateful for their existence. I loved talking to the families, but finally getting to personally interact with the folks from Autism Speaks was one of the highlights of the evening for me. They are several reasons why I no longer support Autism Speaks. Here are the top five reasons why we support them and are so grateful for their existence. Event dates vary by location. Autism is naïve. Our Autism Response Team (ART) is specially trained to connect people with autism, their families, and caretakers to information, tools, and resources. Starting tomorrow it will be Autism Awareness Month. The first reason I can no longer support this organization is what was going on at one of their centers. ( Log Out / Not research for improving therapies and equipment that helps individuals with autism, but research for a … We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Learn more here. Between work, my boys, writing and those errands that seem to creep onto my list every single day, no matter how I try to cross them off, it’s easy to become overwhelmed. Organizations that support them will not be getting our money until they choose to support causes that actually support autistic people. You are alone. By Sandy KinnamonI thought it might be helpful to give some personal context as to why I don’t support Autism Speaks and am participating in efforts to boycott them.My daughter was diagnosed as Autistic May 2012. Autism Speaks does very well speaking for itself, but it does not speak for me, my fiance, or anyone else I care about who is autistic. That may help tone down the "fear and pity" image of autism that Ne'eman and other self-advocates protest. ( Log Out / Change ), Looking To Nudge Senator Elizabeth Warren Into 2016 Presidential Race – NYTimes.com, Malicious Prosecution Claim Against Hollywood Sex Abuse Accuser Can Proceed, Says Judge, Massive Car Bomb Explodes Near Home Of Iranian Ambassador In Sanaa, Yemen, Protests Erupt After Decision In Eric Garner’s Chokehold Death. Autism Speaks does not speak for me as a person living with Autism. If Sponsors are interested in supporting Autistic people, we urge them to support one of … For the first ten years of existence, their entire purpose was to find a cure for autism and eradicate it. A Diary of a Mom has sympathetically addressed the families who defend Wright’s description of autism. 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